Support users to access information and services

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Project Title: Support users to access information and services
Project Number: CORDIS-191905
Project web address: Follow on CORDIS
Organization: Uppsala Lans Landsting, Sweden, Uppsala
Collaborators: European Health Telematics Association, BE
Health Information Management Sa, BE
Region Syddanmark, DK
Fundacion Vasca De Innovacion E Investigacion Sanitarias, ES
Norrbottens Lans Landsting, SE
Eesti E-Tervise Sihtasutus, EE
Zavod Za Zdravstveno Zavarovanje Slovenije The Health Insurance Institute Of Slovenia, SI
Servicio Aragones De La Salud, ES
Scottish Government, GB
Servicio Vasco De Salud Osakidetza, ES
Anaptyxiaki Etaireia Dimou Trikkaion Anaptyxiaki Anonymi Etaireia Ota - E-Trikala Ae, GR
Forum Europeen Des Patients (Fpe), LU
Etela-Karjalan Sosiaali- Ja Terveydenhuollon Kuntayhtyma, FI
5 Ygionomiki Periferia Thessalias & Stereas Elladas, GR
Azienda Unita Locale Socio Sanitaria N 8 Asolo - Regione Del Veneto, IT
Connected Health Alliance Cic, GB
Principal Investigators (PI): Marco D'Angelantonio, BE
Marc Lange, BE
Benny Eklund, SE
Claus Duedal Pedersen, DK
Liuska Sanna, LU
Stamatiadis Evaggelos, GR
Irune Vegas, ES
Peeter Ross, EE
Athanasios Ballis, GR
Anka Bolka, SI
Luigi Antoniol, IT
Alan Hyslop, GB
Toni Suihko, FI
Juan Ignacio Coll Clavero, ES
James Mclaughlin, GB
Veronika Sundström, SE
 
Project Description:
SUSTAINS comprises a rich basket of services based on giving citizens online access to their Electronic Health Records (EHR). The services proposed have been distilled from the experience of regions which have already pioneered such access. The SUSTAINS Consortium is composed of regions in the EU leading in the area of innovation in services for citizens, and a number of user and professional associations all equally committed to the implementation of key action 13 of the Digital Agenda for Europe. Consortium Partners have already demonstrated this commitment by creating a Group of Interest with such a goal as its main mission. Regions will share their experiences and achievements to speed up the implementation of the SUSTAINS basket of services in a representative cross-section of EU regions. Patient empowerment is high on the agenda of the Consortium, together with great care in addressing the concerns of the professionals in what could be seen as a revolution in the patient-healthcare professional relationship. Legal and ethical issues associated with online access by citizens to their EHR will be thoroughly explored, and lessons will be drawn from 11 pilots in 9 EU countries and disseminated to facilitate the implementation of similar services by other regions. Meaningful and measurable indicators have been selected to assess the impact and satisfaction with the services by citizens/patients and professionals. SUSTAINS contributes to 3 major healthcare¿related issues in modern society: 1. Empowerment of patients: There is a growing tendency by patients and the public to question information from the health system, ask for a second opinion, demand respect and dignity in their treatment, expect convenience, etc. 2. Quality of care: New progress in healthcare means that patients demand, and healthcare professionals want to offer, the best quality of care. 3. Efficiency and economy: There is a growing demand from patients/citizens for improved efficiency and economy.
 
Project Terms:
medicine and health
Project Title: Support users to access information and services
Project Number: CORDIS-191905
Project web address: Follow on CORDIS
Organization: Uppsala Lans Landsting, Sweden, Uppsala
Collaborators: European Health Telematics Association, BE
Health Information Management Sa, BE
Region Syddanmark, DK
Fundacion Vasca De Innovacion E Investigacion Sanitarias, ES
Norrbottens Lans Landsting, SE
Eesti E-Tervise Sihtasutus, EE
Zavod Za Zdravstveno Zavarovanje Slovenije The Health Insurance Institute Of Slovenia, SI
Servicio Aragones De La Salud, ES
Scottish Government, GB
Servicio Vasco De Salud Osakidetza, ES
Anaptyxiaki Etaireia Dimou Trikkaion Anaptyxiaki Anonymi Etaireia Ota - E-Trikala Ae, GR
Forum Europeen Des Patients (Fpe), LU
Etela-Karjalan Sosiaali- Ja Terveydenhuollon Kuntayhtyma, FI
5 Ygionomiki Periferia Thessalias & Stereas Elladas, GR
Azienda Unita Locale Socio Sanitaria N 8 Asolo - Regione Del Veneto, IT
Connected Health Alliance Cic, GB
Principal Investigators (PI): Marco D'Angelantonio, BE
Marc Lange, BE
Benny Eklund, SE
Claus Duedal Pedersen, DK
Liuska Sanna, LU
Stamatiadis Evaggelos, GR
Irune Vegas, ES
Peeter Ross, EE
Athanasios Ballis, GR
Anka Bolka, SI
Luigi Antoniol, IT
Alan Hyslop, GB
Toni Suihko, FI
Juan Ignacio Coll Clavero, ES
James Mclaughlin, GB
Veronika Sundström, SE
 
Project Categories:
Behavioral and Social Sciences > Care systems access
 
Other Information:
Fiscal Year: 2012
Project Start Date: 1 January 2011
Project End Date: 31 December 2015
Project program: CIP
 
Project Funding Information:
Funding Mechanism: PB - Pilot Type B
Year Funding Organization Total Funding, $
2012 European Research Council $9,883,622